Archive for the ‘Relationships’ Category

Finding Support: Outside & In

10.08.11

photo by lululemon athletica, via Flickr

One of the toughest thing about being “chronic” in your twenties is that your peers just don’t get it. You know what I’m talking about. Most folks in their teens, twenties and sometimes into their thirties believe that their body is a machine, created to do as the mind instructs. Typically, if you speak to people much older, or perhaps older souls, you’ll hear more about the synergy of the body and mind, the interconnectedness. But at 20-something, most are only just figuring out their limits at the bar. A real relationship with oneself, with the body, that seems to come much later.

After awhile, you come to the conclusion that your direct peers, your colleagues and classmates, don’t really understand what’s going on with regard to your situation. It’s not that 20-somethings are uncompassionate people, it’s that for the rest of your life seems impossible. It’s just too big to comprehend.

Denial is so common. And when there isn’t a solid support system in place, it’s easy enough to try to hide there and wait it out. We want so badly to believe that this disease is a fluke or that it’ll just go away as quickly as it came. But this perspective doesn’t help address the problem of our health; it doesn’t provide a way to move forward. More specifically, it doesn’t allow us to get what we need to support ourselves.

Via Web in a Page

via Web in a Page

With or without an illness, we arrive at the question we each must ask ourselves: What is the best way for me to be supported in this moment?

The question is worded in such a way as to imply that you cannot do everything yourself. You’re not your own doctor, nurse, massage therapist, spouse, best friend, hiking partner, etc. But you’re also not a victim or completely helpless. It is simultaneously terrifying and empowering to begin to learn to listen to what your body needs. Similar emotions come up when you learn to ask for the support you need.

But in the end, it’s the same idea. Finding internal and external support starts with learning to listen.

Remove any notion of what you should need or want, let the judgement fall off and ask yourself honestly: What is the best way for me to be supported in this moment?

Journal it. Share it here. But listen!

Going Public With Illness

03.11.10

I write this blog anonymously to avoid mistreatment at the hands of potential employers and clients, or anyone really.  But the truth of the matter is, I live my life very much in public.  The majority of the people who know me, know I have this disease.  The majority of the people I interact with regularly know.

They know because I told them.  And I often worry that when I speak the words, “I have RA,” I’m condemning myself in their own mind.  That I’m altering their opinion of me.  That’s, of course, if the person or people even understands the disease.  Others, just think it’s a play for sympathy, which also alters their opinion of me.

From that perspective, it’s easier to keep secrets.  Guard your public image.

Internally, I find it feels better for the people in your life to know your whole truth.  And if you’re open about it, people can support you when you need it.  Who knows? Maybe you’ll bond with someone over your Chronic status.  I did.

But whether you decide to go public or keep it locked down, it’s your decision.  You can keep you disease between you and your doctor, or you and the world.  Don’t let anyone tell you otherwise!

Gratitude Today: Surrogate Family

11.24.09

The last 24 hours have been an interesting reminder of how grateful I am to have family, especially the ones I’ve picked up along the way.

Between the offers to spend Thanksgiving with various sections of N’s (my ex) extended family and my roommates, I’m feeling the surrogate family love.

My relationship with my actual family can feel strained–like when my brother calls me at 7am to tell me he thinks my dad’s cheating on my mother, again.  He’s snooped through my father’s iPod touch and found incriminating emails.  Don’t get me wrong, I’m grateful I have my brother.  And I’m grateful for various facets of my relationships with my family.  But I am so grateful to have the stability and optimistic normalcy of all the family-like connections I’ve formed.